The guy who sold me my car cancelled the plates the very next week. Luckily, I didn’t know that because there was a November expiration sticker on the plate. So the fact that I was driving the car illegally for three months did not bother me. Until now. But now I’m at the DMV.
I know your first inclination is to say that I’m an idiot for waiting until the end of November. But I really, really cannot deal with bureaucracy. To give you a sense of how much I can’t deal with it, I almost did not graduate college because I had too many library fines. I graduated only because my grandma made some calls.
I have found, in adult life, that bureaucracy only gets deeper and deeper, and for someone like me, with Asperger Syndrome, the rules, numbers and conversations that bureaucracy entails is completely overwhelming: IRS, health insurance, 401Ks, I actually have no idea how people cope with this stuff.
Which brings me to the DMV, to register my car, the day my sticker expires.
I have to fill in my age on the form, but there are numbers all over the form and all over the room and I can’t remember if I’m 41 or 42. I know the math problem is 2009 – 1966, but it would require borrowing and carrying, I think, because the 9 is so much bigger than the 0 and that’s where they will line up: the 9 under the 0. The numbers on top always feel like they are flying and I can’t keep track of them and I’ll never get the math problem right. At least not right now. So I guess.
I tell the DMV lady I filled out my form.
She looks to see if I filled in everything.
She says that I left the second part blank.
This is true. It looked like it was too much. Like, how could they want all that information? I just can’t believe it.
She says, “You need your VIN, color, make, date purchased and your signature.”
“I do?”
“Yes. Do you have it?”
“I forgot the car title stuff at my house. Can you look it up?”
“You came to register your car without the vehicle identification number?”
“Oh. Um. I thought I had it.”
I have to go home.
This is not easy. I can’t read a map, and I don’t know left and right, so I can’t follow verbal directions, so I have three routes I know well in Madison, and if I’m trying to get anywhere, I try to get to one of my three routes. For me, it’s not about the fastest route, it’s about not having to follow a new one.
But I’m on the side of town I never go to, so I can’t figure out how to get to one of my routes. I think I have a straight shot to my office, though. So I tell myself I’ll go to my office and then I’ll do my regular drive home, and get the title.
But I get lost going to my office. I would usually call Ryan Paugh for something like this but he’s on vacation. I review the social norms I know about vacations: usually, if someone is your friend, you can call them for help on vacation. But Ryan probably only helps me because I’m sort of his boss.
So I get lost going to my office, and then I go home, and then I take the same route back to the DMV, but it’s so long that I decide to stop at my favorite gas station.
It’s my favorite gas station for the coffee. Have I told you that now that I live in Wisconsin I have taken to drinking gas station coffee? I don’t know what’s come over me. So my favorite meal right now is French Vanilla coffee and a Peanut Butter Power Bar.
I have told you before that transitions are insanely difficult for me. This is one of those times. I am eating—so nice and easy—and going back to the DMV seems so terrible, and isn’t going to ever work out anyway. So I get another coffee and another Power Bar. And it’s so nice, sitting in my car, alone, with no noise, and I think I’m going to die if I have to go back to the DMV.
I do not die, but I do get anxiety and start picking at my cuticles. I have Googled a million times to see if picking cuticles is associated with Asperger’s because it’s insane that I do it. I mean, it hurts and everyone can see it, and sometimes, if it’s a really bad day, I get blood on a nice shirt. Which is today. Well, not really a nice shirt because I was so stressed about today that I did not change out of the shirt I slept in. But I am bleeding.
The only thing I found out from Google is that people with Asperger’s self-mutilate as a way to focus away from what is overwhelming. So it’s like cutting. That’s what’s going on here. I find Googling that another form of this sort of self-mutilation is anorexia, which I wish so much I could have.
Do not tell me this is not acceptable to say. It’s always the fat people who say that. Because really everyone wishes they could be anorexic for a few days, just to get their weight down. I’m just wishing I could be anorexic for the days that I’m picking at my cuticles. The food thing is so much more socially acceptable.
I bring my VIN number to the window where the lady is.
She says, “Hello again.”
Really. She says this. And I can only think of that part of the book Go Dog Go where the dogs say:
Hello again.
Hello.
Do you like my hat?
I do not.
Goodbye again.
Goodbye.
I always liked that part because I felt like Go Dog Go doesn't just have work dogs and play dogs, and up dogs and down dogs. Go Dog Go also has Asperger’s dogs.
So I say, “Hello.”
I hope we are going to do the Go Dog Go script. I’m giddy with anticipation of having a real connection with the DMV lady.
She says, “Do you have proper identification now?”
I panic. I was expecting “Do you like my hat?” I thought she only needed the car stuff. I worry she needs a phone bill with my address on it or something.
I show her my stuff. She helps me fill in the form. She talks slowly for me, and it’s comforting.
She gives me a number and tells me to wait until it’s called.
I look around for people looking at numbers being called. I don’t see a crowd of people holding papers like mine.
Also, I hear a lot of stuff being called. I mean, there’s the Wisconsin ID department, and the driver’s license department, and the car registration people, and you can even get a passport photo taken here. There’s a lot going on. There are a lot of numbers here.
I worry that I’m going to miss my number while I’m trying to figure things out. So I go back to the woman and ask her how long she thinks it’ll be.
She says, “Not long at all.”
I say, “Not long like an hour, or not long like a minute?”
She says, “Five minutes.”
I go back to looking for where people are listening to numbers. I tell myself I have four minutes to figure out where the numbers are coming from. I look around and the place is full of sixteen-year-olds who are handling all the paperwork for their driver’s licenses. Their parents are reading books, taking care of young siblings, not paying attention to the forms and the numbers and the lines. The sixteen-year-olds are doing it.
Is this the DMV for the gifted-and-talented? Is it normal that all these teens can navigate the DMV? How do they know what to do? Where do they get their information?
I cannot figure out who is supposed to call my number. I am not hearing numbers. I so so so do not want to go back to the woman at the desk. I stare at the wall trying to figure out what to do.
The wall at the DMV is, actually, overwhelming. There are videos about immigration and posters about drunk driving, and there are LCD displays of numbers and letters and I have to find the only blank spot on the wall, in between the bathroom doors, to stare.
I tell myself that it will be fine to ask the lady at the window for help again. I remind myself about the airport. For years I was too scared to ask for help at the airport even though I could not read my boarding pass. I missed so many flights that Ryan Healy was not even surprised anymore when I called him from an airport to tell him I was stuck. Sometimes I’d be right there, sitting at the gate, watching the clock, but the clock is just more numbers, and still I’d miss the flight. Or, if I did not miss my flight, it took so much concentration that I would lose all my stuff; there's too much commotion to navigate for me to also read numbers.
So I started asking the person at the counter to circle the gate and the time on my boarding pass. I say, “I’m dyslexic and I can’t read my boarding pass.” The person always has a moment of surprise but usually they watch out for me.
So I pretend I’m at the airport and I go to the DMV lady again. I say, “Can you tell me what to do with this? I can’t figure out how to know where to go with my number.”
She says, “What number?”
I hand her my slip.
She says, “These are all letters.”
I look. And it’s true. They are. But they are tricky letters for someone thinking numbers. Well, the H is not tricky, but the I and the O really threw me off.
I say thank you, and then I see there is an LCD above each window in the whole place that shows the number and letter sequence that is almost like mine but not really mine.
I watch. And then it’s my turn.
I go up to the counter. The woman looks over my form.
I am so nervous that I’m not going to have the right information that I have to look away. I look at the customer at the window next to me.
She has a folder of information. Everyone has folders for their car stuff? How can the whole world be so organized? How can the government require that you be this organized to get through life? Why is no one protesting?
My new DMV lady looks up stuff in the computer. She tells me I have a ticket.
This does not surprise me. I get tickets a lot and I forget to pay them. So I sort of think of all tickets, when I get them, as the amount on the slip plus the inevitable late fee.
I say, “Can I pay it now?”
She says, “No. You need to pay at the police station at the Capitol.”
I don’t know why I say this, because just getting the words out gives me so much stress that I think I’m going to have diarrhea right there on the spot. But I say, “Can I go pay it at the police station and then come back?”
“No. It takes up to seven days to clear in the system.”
“What?”
“The system here needs to show you have no tickets before I can register your car.”
So I settle in for a week of surreptitious, unregistered driving while I wait for the system to clear.
Luckily this is not a day I have to drive to the farm. The farmer drives to my house.
And right when I am trying to get dinner on the table, he says, “Do you have a stamp?”
My first thought is, “It's so annoying that are you are talking to me when I am trying to get dinner ready because it’s too hard for me to do dinner and kids and stamps.” Also, I think, “Who is still using stamps? What do we need stamps for in 2009 besides letters to Santa?”
He says, “I got a ticket today for parking in front of your house, and I want to pay it before I forget.”
Then I put down my pot, turn off the stove and walk over to give him a kiss. The important thing when you have Asperger’s is not to be able to do stuff you can’t do, but to surround yourself with people who can.









This brought back memories of trying to help my daughter cope with ADHD. I did not realize how much society ignores people with disabilities until I had a daughter with one. I have been reading your blog for several months now. I admire you so much. You are an incredible person. You have encouraged and inspired me in many areas of life – from work to home. It is amazing how much you have endured and overcome! Thank you for this blog. May God bless you.
Posted by mara on 12/01/2009 at 08:25am | permalink | Reply to this comment
OH PLEASE! I have ADD and I can manage without a keeper or government intervention. This is ridiculous.
A grown woman who can't find the VIN?
Posted by Belinda Gomez on 12/03/2009 at 03:31pm | permalink | Reply to this comment
Belinda,
With all due respect, just because you have an issue and can deal with it well doesn't give you license to criticize everyone who else who has issues. I have ADD and my brother has Asperger's. What Penelope, my brother and others with Asperger's deal with is far beyond what you and I deal with. We have time management issues. We have trouble focusing. We also have lots of energy and drive and when we are doing something that we are really interested in. While ADD can complicate things, we can still for the most part retain our ability to interact with people normally.
People with Asperger's have great difficulty with this. They miss social cues. They can talk for hours about subjects that no one else cares about because they don't realize people aren't interested. They have to be taught to maintain eye contact and have trouble dealing with basic social protocol like courtesy. My brother did not say please or thank you until he was 12 in spite of constant prodding. I said them regularly by the time I was four. People with Asperger's also require some degree of regularity in their routines. Many people with Asperger's also tend to have anxiety disorders. With the VIN number example, it's not the Penelope was stupid. She was flustered and anxious and likely forgot. Since I also have an anxiety disorder that I was only recently diagnosed with and am learning to control, I can relate.
Your reaction is honestly a shame. I have always found that my struggles have made me more humble and compassionate. I can understand what it is like to suffer, and I also know how to learn to compensate. I don't coddle people or make excuses, but I try to uplift and help people to better themselves.
Unfortunately, other people take your track. They become arrogant and believe that they have suffered and won, therefore it is only weakness that causes others to fail.
This is utter nonsense. The truth is that you learned how to compensate and overcome ADD. We didn't simply overpower it through strength of will. Sadly, when I look back at my lowest points, it was usually someone like you who was there to kick me when I was down and belittle my problems.
We are the people who should be helping people to change and encouraging them whenever we can. If we can't, then we should at least do them the courtesy of staying out of their way.
Posted by Anthony on 2009-12-03 20:26:49 | (Comments wont nest below this level)
Belinda, if you really had "ADD" you would know that the previously used term "ADD" expired with the most recent revision of the DSM. Consequently, ADHD is the current nomenclature used to describe the disorder as one distinct disorder which can manifest itself as being a primary deficit resulting in hyperactivity/impulsivity (ADHD, predominately hyperactive-impulsive type) or inattention (ADHD predominately inattentive type) or both (ADHD combined type).
Posted by Jessica on 2009-12-04 06:39:57 | (Comments wont nest below this level)
Threre are actually a number of groups for that sort of discussion. My favorite was always Spectrumites (spectrumites.com), though it's rather dead at the moment. AFF also was good at one time, though it went through a crissi of its own a while back. aspiesforfreedom.com Wrong Planet is another, though I wouldn't touch that one with a 10 foot pole :P
Posted by Eponine on 2010-01-04 01:40:47 | (Comments wont nest below this level)
I had no idea this type of stuff was so hard for you! There's got to be some sort of group, or discussion board or something where people post ideas and tips and tricks about how they navigate things like this.
Growing up feeling this much stress over 'simple' things like this, when everyone else seemed to be doing okay, must've really sucked.
Posted by J (the regular) on 12/01/2009 at 08:33am | permalink | Reply to this comment
I second that. I had no idea how difficult these routine tasks were for some people. Is that why you hired a house manager? That makes sense to me. Perhaps you need to hire another or perhaps there should be an advocacy agency to help people with Aspergers with this stuff. Anyway I can't understand why you have to go in person to attend to your vehicle license. Crazy system!
Posted by Heather on 12/01/2009 at 06:08pm | permalink | Reply to this comment
Heather,
Are you for real? Grow up.
Posted by Corinne on 2009-12-02 10:04:54 | (Comments wont nest below this level)
You are so full of crap.
Posted by R on 12/01/2009 at 09:03am | permalink | Reply to this comment
There's just no good reason for this comment. Why tell someone that they're full of crap? Simply stop reading the blog.
Hopefully you'll lose some of the hate in your heart.
Posted by Rhonda on 12/01/2009 at 12:11pm | permalink | Reply to this comment
"The important thing when you have Asperger’s is not to be able to do stuff you can’t do, but to surround yourself with people who can."
So, I may nothave Asperger's, but this statement is true for everyone. We're not all great at everything – infact there are plenty of times when we ALL suck at something (even seemingly simple things) and surrounding yourself with people who can pick up that slack makes life infinately easier.
On another note- I have the same types of issues with numbers. For years I've been trying to explain to my engineer husband how the numbers literally float around the page when I look at it and I should probably not be the one doing the taxes.
Great post. Thanks.
Posted by Melissa Murphy on 12/01/2009 at 09:10am | permalink | Reply to this comment
And that's why the best marriages/partnerships are between people who complement each other. Then you both have someone who can.
Thanks for a funny and charming post, and I'm with you on the temporary anorexia!
Allison
Posted by Allison Williams on 12/01/2009 at 11:59pm | permalink | Reply to this comment
I don't have Asperger's, (I'm insanely good at reading body language), but your experience at the DMV describes me perfectly. It's why I carried an expired license for 2 years before finally renewing it, and only after I needed a valid license to buy Sudafed. I'm sharing this post with everyone who gave me heck about my license.
Posted by Heather on 12/01/2009 at 09:20am | permalink | Reply to this comment
I feel for your plight and I don't mean to make light but you are really funny. The Go Dog Go part, funny. And I'm sorry but the DMV is challenging for anyone, except maybe the gifted and talented.
Posted by Jill on 12/01/2009 at 09:22am | permalink | Reply to this comment
Reminds me of the time that the police came to our house, because my Mom wouldn't return the library books. Though that was because she's anti "liberal establishment" and "no one can tell her what to do."
Life with people is hard.
Posted by MJ on 12/01/2009 at 09:37am | permalink | Reply to this comment
LMAO!
Posted by Heather on 12/01/2009 at 10:05am | permalink | Reply to this comment
1) why didn't you send one of your assistants to the DMV?
2) How come are you the boss of Ryan? Isn't he the CEO of the company?
It's a funny story, but I'm late on this blog and wanted to catch up
Posted by Gloria on 12/01/2009 at 09:45am | permalink | Reply to this comment
You bring up a good point about the assistant. I actually thought the car owner had to be there in person. But maybe not. Even now, I'm not even sure. But I think that I will ask my assistant to go for the followup visit to the DMV. That's a good idea.
As for who is boss of who. Clarifying: Ryan Healy is COO, not CEO. We have a new CEO — Ed Barrientos. Ryan Paugh is the one who helps me with directions.
Penelope
Posted by Penelope Trunk on 12/01/2009 at 10:47am | permalink | Reply to this comment
Penelope,
When faced with situations that you know are going to be overwhelming bring along an assistant or a farmer. They can help you and then perhaps the next time the same situation arises you can go on your own.
As for your difficulty with directions and getting from one place to another – have you ever tried a GPS? They can talk to you and tell you when to turn.
This post was so enlightening. My children face similar issues and this helped me see things from their point of view.
Go Dog Go. Great book. That was funny you thought of that.
Posted by Amy on 2009-12-01 17:07:12 | (Comments wont nest below this level)
You are a mess. I love it.
Posted by Lynn on 12/01/2009 at 09:47am | permalink | Reply to this comment
What happened to your house manager? This seems like the perfect task for them to either do by themselves or to tag along with you.
I thought the anorexia comment was funny because when I was in the 4th grade, I read Steven Levenkron's The Best Little Girl in the World at least a dozen times and I tried really hard to be anorexic but I never made it past dinner.
Posted by Joselle on 12/01/2009 at 10:00am | permalink | Reply to this comment
Yes, good suggestion, Joselle. I'll try it.
I also loved reading The Best Little Girl in the World. And I think it's an achievement to have that book and Go Dog Go show up in the same comments string. So thank you for that, too.
Penelope
Posted by Penelope Trunk on 12/01/2009 at 10:49am | permalink | Reply to this comment
Thanks for the post, it will help me be nicer to people when the ask for help; it is really hard for me to comprehend why people need explation and directions for the "simplest" tasks. I do however know how hard it is asking for help, but it is hard to remember that wheh others do . If they are asking for help it is because they really need it. I did not understand until yesterday why opposites attract, your post today confirms my discovery.
I am liking the farmer more and more (he is good for you, and I am sure you are good for him too).
Posted by Cat in Boston on 12/01/2009 at 10:12am | permalink | Reply to this comment
Did you know that your car will have its VIN printed on it…either on a plate on the dash, or on the inside of the driver car door?
So if you drove to the DMV, you can just go to the parking lot and get it off your car instead of driving home…
Posted by Anna on 12/01/2009 at 10:13am | permalink | Reply to this comment
I had no idea I could find the VIN there. I was wondering how to find it because I need it to request a replacement title so that I can donate my nonworking car.
I don't have aspergers but dear lord, the DMV confuses me. My parents have expandable files for all these sorts of things and I just keep meaning to get it figured out and to keep all my papers in one "good" location and then having no idea where they are when I need them. Maybe I'll give it another go this weekend…
Posted by Bethany on 12/01/2009 at 02:26pm | permalink | Reply to this comment
Would a GPS unit help you navigate?
Posted by Josh Schroeder on 12/01/2009 at 10:18am | permalink | Reply to this comment
It was hard for me to read this post but life is hard too.
You have a good sense of humor. I'll try to add mine here.
The Beatles – Drive My Car video on YouTube
http://www.youtube.com/watch?v=r490KKGN8mw
Take care.
Posted by Mark W. on 12/01/2009 at 10:19am | permalink | Reply to this comment
So to summarize, you can't calculate your own age. You can't drive without getting lost. Although you are a writer, you can't read or fill out a simple form without help. You can't anticipate that registering a car requires the VIN. You're terrified by the DMV, where the gravest danger is death by boredom.
It's amazing you can even survive, let alone graduate college or run a business.
Posted by JR on 12/01/2009 at 10:20am | permalink | Reply to this comment
It is indeed amazing, and all the more admirable that she has been able to accomplish so much in spite of her disadvantages.
Posted by Anthea on 12/01/2009 at 11:36am | permalink | Reply to this comment
I don't think J.R. intended his comment to comfort or congratulate, or inspire admiration of Penelope. He seems to be saying, "If you can't play by the rules, don't expect to live in the Real World."
I don't deliver well on routine expectations myself – in fact what Penelope does running her own business is beyond me, even though I'm her age plus a little. J.R. would have us both out with the wolves.
I just wish people like this showed their cards a little more plainly in daily living, without the anonymity of a blog comment. I'd tear those cards up and throw the pieces in their faces.
Posted by Paul on 2009-12-07 16:51:23 | (Comments wont nest below this level)
And you, JR, lack common empathy.
How can I put this…it's amazing you aren't in jail for committing violent acts?
Posted by Dree on 12/01/2009 at 02:32pm | permalink | Reply to this comment
"Because really everyone wishes they could be anorexic for a few days, just to get their weight down."
Please tell me you did not just say that.
I would rather read 1,000 of your miscarriage posts than that one sentence.
Posted by Dan Owen on 12/01/2009 at 10:20am | permalink | Reply to this comment
Why? It's true … at least for most of the women I know.
It's the universal desire of people that the hard things should be made easy, and we have this insane idea that if we were anorexic, our food issues would be easy because we wouldn't have to think about them.
If you've never suffered from this paradoxical and perverse desire, then you are very lucky.
Posted by Editormum on 12/02/2009 at 09:03am | permalink | Reply to this comment
Me too, it's true, Penelope. I prefer the miscarriage posts over the anorexic wish any day.
Posted by ioana on 12/02/2009 at 11:21am | permalink | Reply to this comment
That sentence made me sick to my stomach. I get that not eating is less noticeable than bleeding all over the place, but it's not a trade you want to make either. And no, it isn't just "fat people" who would tell you not to say you want anorexia. The reason that one sentence upset me is because I've been there. I know what it's like, and it's certainly nothing desirable. Turn the tables. Would you find humor in it if I said I wanted Aspergers'?
Don't be a wannarexic. Nobody likes them.
Posted by Lydia on 12/03/2009 at 03:59pm | permalink | Reply to this comment
Here is one to add to the Asperger's – Daddy Complex.
Posted by Richie on 12/01/2009 at 10:26am | permalink | Reply to this comment
This is so absolutely refreshing. I silently pat myself on the back every time I manage to get through an airport without issue and I wonder how everyone else is so non-chalant about it.
I'm so relieved that it isn't just me.
When it comes right down to it, if I sally on and push through the panic attacks, everything turns out all right in the end… even at the DMV or doctor's office when I hopelessly just want to throw my debit card at them and tell them to just make it all just go away.
Posted by Lyndsey Fifield on 12/01/2009 at 10:31am | permalink | Reply to this comment
jayz- people can be mean in the comments!
This story will remind me to be kind when I am dealing with someone who can't get it together.. Thanks.
Posted by Ayelet on 12/01/2009 at 10:36am | permalink | Reply to this comment
I don't think that's the lesson those commenters want you to learn. More that whenever anyone's at the end of their rope, they're indulging in self-pity and should have it scoured right out of them. For their own good, but more importantly, for the good of society, because it's hard for everybody – and we had better like it that way lest we become a decadent and failed civilization.
Posted by Paul on 12/07/2009 at 05:17pm | permalink | Reply to this comment
Hi Penelope,
Even as someone who does not have any learning disabilities, I definitely know how you feel. Especially this paragraph: "She has a folder of information. Everyone has folders for their car stuff? How can the whole world be so organized? How can the government require that you be this organized to get through life? Why is no one protesting?"
My mom is to me what the farmer is for you — the person who always has their shit pulled together. And just remember, even the people with the folders are bewildered sometimes too.
Posted by Danielle on 12/01/2009 at 10:37am | permalink | Reply to this comment
Wait, you could have gotten the VIN from under your windshield on the driver's side – you can see it from outside by simply looking at the bottom of the windshield where your windshiel wipers rest… assuming your car is not 50 years old. Also, they now put VINs on the doors of the cars. Could have saved you a lot of hassle!!!
Posted by Ulyana on 12/01/2009 at 10:42am | permalink | Reply to this comment
I see someone else mentioned this as well. I am shocked.
I remember the year I read the Iliad in college, and the class complained about it. And the teacher said all college freshmen read the Iliad because it's important to have a set of shared references, as a society, so that we can function together. I feel like I got the Iliad part of the shared knowledge but not the car part.
Penelope
Posted by Penelope Trunk on 12/01/2009 at 10:54am | permalink | Reply to this comment
I wish the DMV lady would have told you. It's really her job. Of course, she doesn't **have** to, but it seems she could have easily prevented you from going home once you mentioned that you'd have to go back to the house.
Also, just as one of the readers mentioned, you should be able to do the renewals online going forward (but I can't really speak for WI, never lived there).
Posted by Ulyana on 2009-12-01 12:08:50 | (Comments wont nest below this level)
On the bright side, they won't appreciate the poetry when their armour rings around them.
Posted by TwistedByKnaves on 2009-12-01 14:11:58 | (Comments wont nest below this level)
I'm ashamed for my past home state if they don't give you the capability to renew a registration or register a car online (in the comfort of your own home or office). I thought they were more advanced than that!
Pen
Posted by Pen on 12/01/2009 at 10:45am | permalink | Reply to this comment
I too have wanted to be anorexic (just for a week or so).
Posted by Lisa on 12/01/2009 at 11:18am | permalink | Reply to this comment
I hate the DMV. I never have the right stuff and I always disappoint the lady behind the counter who usually cluck-clucks but then I look like I'm going to cry so she makes it all better.
What I really need, though, is a farmer.
Posted by Nancy Imperiale on 12/01/2009 at 12:12pm | permalink | Reply to this comment
I loved how you ended that post. More people need to take advantage of those "lightbulb" moments and just kiss the faces of the ones they love.
Posted by Jessie on 12/01/2009 at 12:13pm | permalink | Reply to this comment
I broke out in a cold sweat just reading this. Every time we change our cars I have to go through a similar process here in Spain, with the added complication that everything is in my second language. I don't suffer from Aspergers, and I'm an extremely confident person, but I find this visits hell.
It really is time that these bureaucratic hell holes actually started to realize they are performing a public service. And why don't they streamline things? The whole notion of then going to another place to pay your ticket and having to drive illegally for a week while the payment clears is ludicrous. Why cant you simply pay what's owed and process the thing there and then?
Posted by Mike CJ on 12/01/2009 at 12:20pm | permalink | Reply to this comment
"It really is time that these bureaucratic hell holes actually started to realize they are performing a public service. And why don't they streamline things?"
Mike, I totally agree with you here.
The government is a monopoly. The incentives to streamline and innovate don't compare to free enterprise. The irony is that the people who work in these "bureaucratic hell holes" have to endure the same hell as the rest of us.
Posted by Mark W. on 12/01/2009 at 01:29pm | permalink | Reply to this comment
It's these storytelling posts that really give me a clear sense of what it is like to live with a disability. Much more effective than hard and fast facts or a clinical analysis type of report. It adds that human element.
Posted by Amanda on 12/01/2009 at 12:28pm | permalink | Reply to this comment
I read an interview with Rupert Everett the other day and something he said has stuck with me: 'It's this whole language of political correctness, which I think is the closest thing to evil.'
You are not politically correct, and for this MUCH thanks.
Posted by Rach on 12/01/2009 at 01:02pm | permalink | Reply to this comment
Hi Penelope – Is this typical of Asperger's or(and?) have you been evaluated for an anxiety disorder? It reads like an extended anxiety attack.
Posted by secretseasons on 12/01/2009 at 01:02pm | permalink | Reply to this comment
Yeah. Typical for Asperger Syndrome to come with anxiety trouble. I should look into this…
Penelope
Posted by Penelope Trunk on 12/01/2009 at 06:55pm | permalink | Reply to this comment
I LOVE this post, even with the asking-for-trouble anorexia comment. Stress and confusion at the DMV is natural, but yours is like a comedy routine. Sorry, but I nearly laughed out loud. Just drive carefully till the ticket clears.
Posted by prklypr on 12/01/2009 at 01:08pm | permalink | Reply to this comment
A friend went on the nicotine patch. He could not find or read the directions. Nobody told him to put it in a different place each day. Result – a large boil that took serious medical treatment. Warnings are important and need to be conveyed in multiple ways.
If it's any comfort, lots of people are intimdated by the DMV. I'm intimidated by the post office.
Posted by Barbara on 12/01/2009 at 01:30pm | permalink | Reply to this comment
You write the story so well, it almost seems like it was worth living through.
Your point about the overwhelming wall struck home for me. When I evaluated some schools last year while prepping to transfer my sons, we eliminated one right away because the walls were so heavily decorated there was nowhere for the eye to rest. One thing I like about the new school we're in is the teachers swap all the wall hangings regularly – they stay uncluttered and refreshed. That's what works for merchandising displays so why wouldn't it work in a classroom?
A few quick tips: first, always bring a folder. Even if it is just holding grandma's recipes, a folder impresses the hell out of the bureaucracy. You can pass for organized or at least get points for the assumed attempt to be organized. (This works in corporate life too.) Second, write down your questions (e.g. "What should I do to register my car?" and "Does the owner have to be the one registering the car?") and then phone first. You may spend time on hold waiting, but you can use that time, and then when you get there you'll be forewarned as to what to expect. Forewarned is forearmed.
I can't help but wonder if you'd treated the DMV like a business meeting – which it is for them – you would have been able to hack it. When you go back in 7 days, maybe you want to try that? Then you'll be a dog in car (legally) again (keeping with the go dog go theme).
Posted by ejly on 12/01/2009 at 01:37pm | permalink | Reply to this comment
I live in Upstate NY and you can no longer call the DMV to ask them questions. However, there are usually Freq. Asked Ques. on the nys dmv website and we can renew car registrations on there! It's great, I've avoided DMV for the last few years this way!
Posted by Emm on 12/02/2009 at 03:57am | permalink | Reply to this comment
I thought I was the only one that picked my cuticles till they bled. Everyone else always seems to have such nice fingers :)
Posted by Kiesa on 12/01/2009 at 01:43pm | permalink | Reply to this comment
I'm that person with the folder. Your post gives me a better understanding of why my friends constantly seem in awe of what feels ordinary to me.
Just before Thanksgiving, a friend asked me how to make all the food dishes finish at the same time. I was puzzled on how to give him advice. It seems mine just work out that way. I guess I always have a finish line in mind (whether it be that dinner is at 6, or that I'll walk out of the DMV with my car registered.)
But, on the other hand, I often make stupid comments socially. If I have a deadline or a goal, I'm fine. But if I'm in a social situation, I don't know where to go.
Posted by no name please on 12/01/2009 at 02:11pm | permalink | Reply to this comment
I have a love hate relationship. With your blog, with you, probably with my life in general. Sometimes (like today) you write posts that make life and community so real to me. You're not ashamed to share and be vulnerable and take all the trash talk that comes with it in an effort to impart very useful information for those that continue to read here. Admittedly, there have been times when I've sworn you off, deleted my bloglines subscription and vowed to never read another crazy post you wrote again. Then I sat back and examined why I was so uncomfortable with what you said. It's not always a learning experience or an "aha! she was right!" moment, but it does get me back here so that I don't miss out on the gems like today.
Thank you for the moment to moment account of what it feels like to go through what you do and the simplest advice of all to remember that we're not alone and it is okay to rely on others to get through life.
Posted by Bernadette Merikle on 12/01/2009 at 02:36pm | permalink | Reply to this comment
This is such a nice comment. Thank you. Thank you for trying again. I hope that the time in between the times you delete me from bloglines gets longer and longer and longer….
Penelope
Posted by Penelope Trunk on 12/01/2009 at 06:56pm | permalink | Reply to this comment
It's rare for big catastrophic problems to break me down. It's always the grinding mileau of daily life that does it. Believe me, it's not just a problem for people with Aspergers!
This post captures that essence – the "little things in life" – perfectly.
You write extremely well.
Posted by Mike on 12/01/2009 at 02:37pm | permalink | Reply to this comment
I'm not the dude for the job, but it seems there's tremendous potential for a business doing consulting for folks with Asperger's.
Something with a 24-hour on-call number, lots of opportunity for online networking, and required practice sessions with the whole "awkward conversation/drink holding" tango. There could be body language index cards!
Sooo…you wanna start another business?
Posted by Dree on 12/01/2009 at 02:39pm | permalink | Reply to this comment
The last thing the pinks (=NTs) want is for an a$$burger to be allowed any breaks in daily living. The usual attitude is that we are weak characters who don't belong in (their) Real World and don't deserve any better than we've got.
Posted by Paul on 12/07/2009 at 04:57pm | permalink | Reply to this comment
Thank you so much for this. My husband can do theoretical physics, but he can't pay bills. I mean physically can't pay them, for reasons much like you describe. He missed whole semesters of university because he could not navigate the bureaucracy involved in registering for class. I used to be baffled that someone so smart couldn't manage not to bounce checks. I mean, he can do calculus in his head; surely he should be able to work a check register? Finally I accepted that I would never understand it but he wasn't going to change, and resigned myself to being the mundane one in our relationship. And here you go and describe what's going on in his head. Not literally — he can handle numbers and directions just fine. But you are describing what it's like to function in a world that is not quite set up for the way you think.
My husband has learned the magic of the folder too. Now when he gets pulled over on the highway, he pulls out a folder containing the last few years' insurance cards, car registration info, etc. The officer is often so satisfied by the mere existence of such a folder in the glove box that my husband gets off with a kind warning. Whereas, he used to routinely wind up in jail for being disorganized and socially clueless in the presence of a police officer.
He'd start off confused and nervous, and somehow it would escalate until he was out of the car with his hands on the roof getting patted down. Somehow, the existence of a folder, even if it's not very neat or entirely complete, seems to satisfy the authorities that you mean well and aren't trying to hide anything.
Posted by Becky on 12/01/2009 at 02:40pm | permalink | Reply to this comment
He trained you to do all the crap he doesn't want to be bothered with.
Posted by Belinda Gomez on 12/03/2009 at 03:34pm | permalink | Reply to this comment
Sorry Becky but I agree with Belinda. It's such a cliche… oh, honey I just can't seem to get the hang of this ironing…..
That can be ok, as long as you train HIM to do the things you hate – by being incompetent at them.
Posted by Cathy on 2009-12-03 19:37:46 | (Comments wont nest below this level)
Penelope, you should know, the 16 year olds aren't actually gifted and talented – they're just EXTREMELY motivated. :)
Posted by Tzipporah on 12/01/2009 at 02:42pm | permalink | Reply to this comment
Stick two labels to the dashboard: a left arrow with the word LEFT and one for RIGHT. Then get a GPS. Driving problem solved.
Posted by Brad on 12/01/2009 at 03:01pm | permalink | Reply to this comment
I have been a habitual nail biter for years. Stress always gets me going and I don't even realize I'm doing it.
Anyway, once again I loved reading this and can't tell you how much I admire your ability to be strong in the face of your Asperger's.
Keep bouncing back and coping. All the best.
Posted by Jonny on 12/01/2009 at 03:17pm | permalink | Reply to this comment
Simply cute :)
Posted by Jacob Revold on 12/01/2009 at 03:28pm | permalink | Reply to this comment
Thank you for making me feel better about my day and my little annoyances. I thought I had a hard time with bureaucracy.
Posted by PlanetHeidi on 12/01/2009 at 03:32pm | permalink | Reply to this comment
I'm disappointed at your anorexia comment not because I'm one of the fat people (I'm a US size 0) but because I think it's incredibly immature to go straight to thoughts of anorexia when thinking about losing weight.
Yes, all women feel a little 'fat' sometimes. I think that might be a universal truth. Most women even wish they could come down with the flu or a bout of food poisoning for a few days to shed "just one or two kilos". But really, no one wishes they were anorexic.
Anorexia isn't about being dissatisfied with your weight, it's about being dissatisfied with yourself. Usually it's a way of someone who doesn't feel that have any emotional control to gain control over their bodies.
Penelope, I can't help but read and love you blog, and of course you're entitled to your opinion, but I thought you had more maturity than that. It just seemed like a very childish comment.
Posted by Marina on 12/01/2009 at 04:09pm | permalink | Reply to this comment
Marina – I'm one of those people who sometimes wishes she was anorexic. I'm not one of the fat people, but I'm not one of the skinny people.
I understand that anorexia is about control; I understand it's a very serious disease. That doesn't stop me from wishing for an "easy" quick fix like food poisoning, lipo, or anorexia.
That doesn't make me immature, that makes me temporarily lazy.
Posted by Anony on 12/01/2009 at 06:02pm | permalink | Reply to this comment
@Anony Like you, I am neither fat nor super-skinny. There are times when I would like to lose a little weight and a quick would be nice. It's just that it's never occurred to me for even a moment that anorexia would be a 'quick and easy fix' or the 'lazy way out'. I think of it only as a sad, lonely, scary, painful and sometimes life-threatening disease. I've sometimes fantasised about a magic wand but never about anorexia.
Posted by Caitlin on 2009-12-01 21:21:02 | (Comments wont nest below this level)
I agree only I view it like a temporary fantasy… there are plenty of instances where I wish for dumb things, like the willpower of an anorexic…the skin of a print model…soon I quickly come back to earth and realize what I have isn't so bad. It's almost like an outlet for the anxiety. I wish I could explain it better. I took the anorexia comment as humor, yes it is serious for a lot of people, doesn't mean it has to become this taboo 'thing' no one can mention or joke about.
Posted by Emm on 2009-12-02 04:07:48 | (Comments wont nest below this level)
I have to agree. Anorexia and all eating disorders are emotional disorders. But I do think Penelope's comment was not the most important part of her post. We all make thoughtless remarks based on a lack of understanding. I think her point was, if you're going to have an emotional disorder, maybe there could be a small benefit, such as being thin. Not the most sensitive, but given the context, perhaps just a bit of self depracating diversion.
Posted by lucinda on 12/02/2009 at 10:54am | permalink | Reply to this comment
Marina – Agree completely.
Anorexia is such a horrible addiction. It is no way to live, even for a week.
Posted by Melissa on 12/02/2009 at 06:17pm | permalink | Reply to this comment
I … ALWAYS get lost when driving/cant find my way out of a paper bag. I ALWAYS screw something up at airports (especially during international travel). I have ALWAYS sucked at admin (have trouble with complicated tax preparation; dont invest my money smartly; cant grasp general finance issues (ie. difference between principle & interest).
PT: YOU ARE NOT ALONE in being overwhelmed by minutia like this …. I'm right there with you, sis.
Posted by neko on 12/01/2009 at 04:26pm | permalink | Reply to this comment
Many with ADD have trouble with directions. So buy a GSP.
Posted by Belinda Gomez on 12/03/2009 at 03:36pm | permalink | Reply to this comment
Thanks for helping others understand how intimidating some tasks can be, Penelope. I, too, pick my cuticles until they bleed, less so the older I get, if that's any comfort to you….
My son and I both have Asperger's. Once we went to a restaurant that had such a "busy" menu that neither of us could read it. We finally made it work by covering up all but small portions of it and struggling through. I think we ate chips and salsa, and maybe burritos, out of desperation.
You are a terrific example of the incredible high-functioning and low-functioning that can exist in one person with Asperger's. Congratulations on soldiering through the DMV on your own. Maybe I will take some courage from you and try to get Washington State license plates, I've lived here 4 months now…
Sara
Posted by Sara G on 12/01/2009 at 04:33pm | permalink | Reply to this comment
I LOVE your Go, Dog. Go analogy!
Posted by jenny on 12/01/2009 at 05:14pm | permalink | Reply to this comment
Well, everyone,
After reading Penelope's post and all these comments, I'm sorta feeling "normal" again. I can read a map, follow directions, renew my car registration…pay a bill on time. And from age six I took those little challenges for granted. But I've got other ones, like I can't learn a foreign language, or memorize a bunch of boring facts, or do high math (or low math), or spell most three syllable words. Thank Heaven for spell-check!
But it seems to me, we're all wired differently, and we all process information differently, and we all have our strong points and weak points, and maybe the condition of mental variety among us all, maybe THAT'S "normal!" Maybe a restricting condition in one way of thinking makes us excel in others, and that this mental rainbow creates a wider range of varied thinking and creativity. 'Cause if we all thought the same way, and acted the same way, and believed the same things, from where would evolution grow?
So Penelope…okay you get lost driving home. But not within your sentences. You're never lost in writing…once you hit SUBMIT.
Irv P.
Posted by Irv Podolsky on 12/01/2009 at 05:24pm | permalink | Reply to this comment
I only recently found your writings – I have a recurring mail search in google for 'Asperger' that returned one of your previous posts. I followed you on Twitter and you followed me back, thanks. Anyway, I have a really hard time coping with those routines and massive paperwork requirements too. This is especially ironic because I depend on grants to find my research and that's nothing but endless, mindless paperwork.
I'm not so sure that the 16-year olds negotiating the DMW are 'gifted and talented.' I think G&Ts would get lost in the DMV maze as well. These kids are probably 'normal' (neuro-typical) (whatever *that* is) and that's how they function. They pick up on all those 'clues' people keep telling me about.
Posted by Hal on 12/01/2009 at 05:31pm | permalink | Reply to this comment
Those fingers can be addictive, can't they?
http://picasaweb.google.com/john.w.ross/Public?feat=directlink
Posted by TwistedByKnaves on 12/01/2009 at 05:50pm | permalink | Reply to this comment
I love your summary! This is true for all things. Getting people in your life who can do things you cannot is what everyone needs. In fact, that's the key to success. Those who are best at it get the farthest.
-Meg
Posted by Meg Bear on 12/01/2009 at 05:57pm | permalink | Reply to this comment
Thank you for this, Penelope. It embodies your greatest strengths even as you share your weakness. It is very moving in its honesty and vulnerability.
Posted by Amy on 12/01/2009 at 06:20pm | permalink | Reply to this comment
When you Google, Google self-harm instead of self-mutilate. Also, you might try to come up with some other keywords.
Example – Here's an article in The Guardian titled "Doctors are 'failing to spot Asperger's in girls'" – http://www.guardian.co.uk/lifeandstyle/2009/apr/12/autism-aspergers-girls .
Posted by Mark W. on 12/01/2009 at 06:23pm | permalink | Reply to this comment
And I just wonder, how could your mother not have held you close to her for a very long time?
Posted by LPC on 12/01/2009 at 07:50pm | permalink | Reply to this comment
So, you can't tell left from right, but yet you can be the CEO of Internet start-ups.
And you didn't know that the VIN is on the car, even though that's a basic standard in any data model/relational database, which you would know if you were really doing all the IT work you claimed to have done.
I'm starting to think that your stuff doesn't add up.
Posted by ziggy on 12/01/2009 at 07:59pm | permalink | Reply to this comment
Okay, so you have 3 routes you can follow without getting lost in your hometown. Yet, to see your farmer, you have to take a route from Madison to Darlington, which has several twists and turns, small state routes, etc., ending in a rural area…
It doesn't seem to add up …
Posted by ziggy on 12/01/2009 at 09:17pm | permalink | Reply to this comment
Ziggy: A Vehicle Identification Number is a basic standard in any data model/relational database?
So if I have a database on geographical or financial data, that still includes VIN? Are you sure you're not talking about basic primary keys?
Even if relational databases contained VIN (which some definetly do), why should that knowledge help someone to find his/her VIN on their car?
Posted by Jan on 12/02/2009 at 02:45am | permalink | Reply to this comment
But lots of people can't tell left from right, and can function. Don't forget–none of PT"s companies have ever been successful.
Nothing adds up. There's no standard test for any disorder on the autism spectrum, so you can be as disabled as you claim to be.
Posted by Belinda Gomez on 12/03/2009 at 03:39pm | permalink | Reply to this comment
Since my brother really does have Asperger's, I can say with confidence that there is a perceivable difference between Asperger's and the neurotypical population. I have also worked with people with full blown autism, and I can again say there is a difference. I do agree that the diagnostic criteria for Autism spectrum disorders is a bit broad and may warrant splitting into more distinct disorders, that still does not mean that anyone can claim it. As someone with ADD and social anxiety disorder, I would easily be able to claim some Autism related disorder under your criteria, yet I have been evaluated and diagnosed and distinctly neurotypical in this regard.
While I can't say for certain if Penelope does have Asperger's, the fact that she seems to stick her foot in her mouth with almost every post is indicative of Asperger's.
Posted by Anthony on 2009-12-03 20:47:23 | (Comments wont nest below this level)
Damn, Belinda. You really feel the need to kick Pen in the teeth.
Posted by Paul on 2009-12-07 17:01:39 | (Comments wont nest below this level)
Ziggy, when did she ever say that she was an IT genius. I do recall her trying to start an online employment consultancy, but I do not recall her ever trying to start an IT firm proper. Her company was run through the internet, but it did not produce anything technological.
She would not have to be an 'IT Genius' to come up with or found such a company as the web was simply the medium through which business was conducted. She would simply have to hire people with the proper skill set to implement the technological backend to power the business. If this were not the case, then none of my clients would have their site's because they weren't 'IT Geniuses.'
Posted by Anthony on 12/03/2009 at 08:52pm | permalink | Reply to this comment
@Ziggy and Belinda,
Thanks! Those are exactly my points: Well-written post, but so inconsistent with the persona:
No planning skills (how hard is it to check if this transaction can be done online?);
No delegation skills (with house manager/office assistant, etc., why not just delegate this?)
Worse than anything, no self-awareness of her difficulties handling tasks, ending up being both inefficient and ineffective.
The claims of Asperger's/Dislexia do not change the fact that you need some basic skills to become an entrepreneur. This story sounds a little to close to James Frey to comfort.
Btw, and trying to help: if the transaction that initiated the post was something that could not be delegated (i.e. changing the picture); the story would have been believable. These type of details are something a writer should take into account.
Posted by Melania Rosseau on 2009-12-06 07:11:20 | (Comments wont nest below this level)
Penelope, your struggle understanding maths is a condition called dyscalculia. I worry you are giving people the impression that dyscalculia is just part of Aspergers. They may often go together, but they are separate things.
Posted by Iris on 12/01/2009 at 08:25pm | permalink | Reply to this comment
Oh. Yeah. I forgot about that. Thank you for clarifying. I've linked to it a few times in Wikipedia, and in this post, I linked to the post where I learn that it's dyscalculia. But I think it's a subset of dyslexia, yes?
Anyway, it often comes with Asperger's.
And, in terms of the airport story, it's a lot easier to tell the person at the airport that I have dyslexia. They know what that is, and I get the help I need. If I say dyscalculia, I'll have a harder time getting help.
Penelope
Posted by Penelope Trunk on 12/01/2009 at 10:40pm | permalink | Reply to this comment
Absolutely, most people have never heard of dyscalculia.
Also, describing it as a subset of dyslexia is misleading. I think that's why you're getting the comments with helpful math tips. People don't understand that dyscalculia is not just about numbers flying around. I work in a lab that studies dyscalculia (though not me personally). A lot of mathematical reasoning is related to spatial reasoning, and with dyscalculia, that's where the heart of the matter lies. Hence the left-right confusion, and the map-reading issue. The idea is you are missing the 'mental number line' that most people have.
Posted by Iris on 2009-12-02 02:15:56 | (Comments wont nest below this level)
I had never heard of dyscalculia until I read this post. I just googled it and I'm thinking that sounds like me. I do not have Asperger's and I am not dyslexic, but I get my left and right confused – I have little tricks I use to remember – and I'm awful at math, could never memorize multiplication tables. I use the same routes when driving, even going out of my way, because I can't follow maps or intuitively figure out which way to go. I get lost going to places I've been to many times before. I also have trouble with spatial relations – I have no idea if something is a foot or a yard away from me. Is that dyscalculia?
Posted by prklypr on 2009-12-02 11:15:08 | (Comments wont nest below this level)
I'm not going to tell you it's 'not acceptable' to say that sometimes you wish you could anorexic for a short time. It's up to you to decide what's acceptable for you or not. But I will say that I think you're on your own with that. I have never wished I were anorexic, even for a limited amount of time (which isn't possible anyway). And although I can't see inside the head of every other woman, I don't think it's a particularly common desire among adult females. Teenage girls who don't know better, maybe.
Posted by Caitlin on 12/01/2009 at 09:00pm | permalink | Reply to this comment
Well my guess is that the underlying statement was, that some women will sometimes think about (not necessarily undertake!) drastic measures when it comes to weight loss, no matter what the consequences may be.
It is my belief that everyone thinks similar things sometimes, but about different topics (think about drugs to feel good, alcohol to numb pain, speeding to get a rush, cheating on your spouse to achieve a different kind of satisfaction…)
Posted by Jan on 12/02/2009 at 02:52am | permalink | Reply to this comment
Caitlin and all others, it was a figure of speech get over it. Like no one ever wanted to get a bad cold to drop five lbs? Please.
Posted by Cat in Boston on 12/01/2009 at 09:02pm | permalink | Reply to this comment
I'm already over it… but if you think it wasn't meant literally, then clearly we haven't been reading the same blog. I have been reading PT a long (probably read every single post on this blog) and I'm pretty sure I know when something is just a figure of speech or not.
Posted by Caitlin on 12/01/2009 at 09:24pm | permalink | Reply to this comment
Using long subtraction to figure out your age makes it harder on yourself that it needs to be. The trick is shorter, simpler subtractions and additions. If you were born in 1966, you were 4 in 1970. That means you were 34 in 2000. That means you're 43 in 2009 (unless your birthday is coming up in the next month, in which case you're still 42).
Posted by Caitlin on 12/01/2009 at 09:26pm | permalink | Reply to this comment
Okay. Seriously. This paragraph has eight numbers in it. There is now way that it is a simplification when there are eight numbers.
I know you are trying to help, Caitlin. I know because you are one of those commenters who is insightful and compassionate all the time on this blog, so why should this comment be different?
But it is not helpful, and I think if I tell you why then other people will understand better how to help.
A good way to help someone like me is not to say "Here's a trick for subtraction" because the numbers are flying for me no matter how they are on the page — they even fly for me in that paragraph you wrote. By the same token, it doesn't help to say, "Here's a trick for left and right" because it's the concept I don't understand, not which hand is L and which is R.
The helpful thing in this post was "why don't you have an assistant register your car?" That's really helpful.
Penelope
Posted by Penelope Trunk on 12/01/2009 at 10:37pm | permalink | Reply to this comment
Penelope,
This sounds like a really hard day. I had no idea bureaucracy could feel like this for people with Asperger's, and I appreciate that you shared it.
Also, even though you told us not to, there's something you need to know about anorexia, because you don't seem to know it, and it makes that comment of yours inaccurate and frustrating for people like me to read, who've had friends and family suffer from anorexia. (I'm not fat, by the way.) Anorexia is not about wanting to be thin. For some people, it's about wanting to have something they control; but for many people, it's about feeling that you don't deserve food — or anything at all, really — because you're a terrible person.
I know that was a throwaway aside for you in this post, but every time someone says they wish they had anorexia, I think of my cousin Kerry a few years ago — down to 80 lbs, too small for size zero clothes, and in the hospital — and how helpless I felt about being able to convince her know she was precious and important.
Anyway, in sum, I think you're precious and important too, and I hope you have less days like the one you wrote about, and I also hope you never develop anorexia. It isn't easier to handle.
Love your blog!
Posted by Rachel on 12/01/2009 at 10:13pm | permalink | Reply to this comment
Very well said!
Posted by Melissa on 12/02/2009 at 06:24pm | permalink | Reply to this comment
" I have found, in adult life, that bureaucracy only gets deeper and deeper, and for someone like me, with Asperger Syndrome, the rules, numbers and conversations that bureaucracy entails is completely overwhelming: IRS, health insurance, 401Ks, I actually have no idea how people cope with this stuff"
I really don't either. For the longest time I thought I was the crazy person that could not deal with being a grown-up. It is quite relieving to know I'm not the only one. Thank you for sharing this. I'm sure your candid accounts will lead many to seek help and (hopefully) those around them to be more patient and understanding.
Practical tip: in California, there are DMV registry services – you call them up, they come to you, figure out what you need, get your paperwork and file for you, for about a $25 fee. More than worth it if you ask me. Even if you have to be at the DMV in person, they'll arrange everything else for you. I don't know if you would have this in Wisconsin, or rather, in your small town – but it never hurts to check. Turnkey services are the way to go.
Posted by Marcy on 12/02/2009 at 01:25am | permalink | Reply to this comment
I personally would rather have the flu for a week than anorexia. The flu gets over and you lost the 10 lbs., but with anorexia, you have to go on to pay for long-term therapy.
Seriously, your post is going to help me be a better bookstore clerk. [My first job was typing drivers licenses at the DMV (ha ha!).] Just knowing that different people have different challenges reminds me to be more compassionate toward everyone. And as your loyal independent bookstore clerk, when I screw up this holiday season, please have pity on me in return.
Posted by EllenSka on 12/02/2009 at 03:02am | permalink | Reply to this comment
The last paragraph was such a nice, adorable touch. I got the impression that your partner is the "anchor" in your life that makes you feel you can always come back to a place physically/emotionally.
Posted by Isao on 12/02/2009 at 04:03am | permalink | Reply to this comment
Lucky her, then, to have a partner. Some of us have neither the self-confidence nor the confidence in others to get to that point. I say men have it particularly hard, because without confidence we're not attractive to anybody.
Posted by Paul on 12/07/2009 at 05:04pm | permalink | Reply to this comment
I had the same ocurrence many years ago with a plate sticker that expired earliler than I realized when I bought a car from a dealership. We had recently moved from another part of the country where the motor vehicle process is different. Unfortunately, it was our son (late teens)who got pulled over by the police and who got the ticket.
So off I went to the local court house where I had to plead my son'e case – read my stupidity – before a judge. He was pretty cool and dropped the fine to $10 and ensured that my sons would not get whacked any points.
But during our two-hour in the waiting, it was interesting to see all the weirdos arrive. One young teen was admitting to death threats, others had done even dumber things than me with their cars. Lesson learned: pay attention to your licence plate.
Posted by Jim on 12/02/2009 at 06:35am | permalink | Reply to this comment
a terrific and funny post written with an acute detail and chronology that gives the reader the experience of Aspergers. One of your best posts. you have a gift for conveying the humor and poignancy of our humanity.
Posted by bindu wiles on 12/02/2009 at 07:14am | permalink | Reply to this comment
Also in California if you below to the Auto Club (AAA) you can go there and they will help you with all your car registration issues. I haven't gone to the DMV to register my car in years. In fact, by going to AAA, we pay our car registration and get our tags immediately instead of waiting for weeks to get them in the mail. Since they aren't a government agency, and they want your business, all their customer service representatives are very, very helpful.
Now to your anorexia comment. First I think you put comments like is in your blog to "shock" people to get reactions. I was very angry about this "throw away" statement. I am one of those fat people you mentioned but I have never in my fat life wished I could be anorexic. Have bad cold or the flu yes of course. To me that statement is like saying I wish I could have spent a few months in a concentration camp – hey that's a good way to lose weight too. So I guess your readers are just supposed to chalk up that comment to your having Asperger's and say – that's the reason you can make such a dumb statement. Goes with your lack of social understand so hey give her a break. I'm sorry but you're a high powered individual, you've been very successful in your life — what you say can make a big impact on people. So I'd caution you to please be bit more careful. Anorexic individuals already believe that they aren't doing anything wrong, they don't need someone like you to reinforce their life threatening behavior. Remember people admire you.
Posted by Monica Lond-LeBlanc on 12/02/2009 at 07:28am | permalink | Reply to this comment
Penelope, your comment about the Iliad strikes a note with me. As an adult with ADD, I often feel like I missed some "secret" that everyone else knows… so I often find myself a day late and a dollar short.
Posted by D on 12/02/2009 at 07:40am | permalink | Reply to this comment
For what it's worth, I do really well in bureaucracy…so well I have thought about starting a business to help out people like you. But the angriest and closest to losing control of myself I have ever gotten was at the DMV. That place is crazy-making for even the most socially functional individual. I'm proud you made it through, but next time, take someone else with you who can do everything including telling you where to sign and when to hand over your credit card.
Posted by Melissa on 12/02/2009 at 08:11am | permalink | Reply to this comment
Penelope,
There is no G&T DMV; we're all complete idiots when it comes to the DMV. The entire process was designed by underachivers in High School to get back at everyone else they perceived were out to get them. ;)
~ Scott
Posted by Scott Woodard on 12/02/2009 at 08:18am | permalink | Reply to this comment
I don't have Asperger's but I can totally relate to being distracted: As I’m driving to work this morning, I hear a really good, new song that I want to look up when I get to work to see who the artist is. That’s because for some reason, my XM radio wasn’t showing the artist or the song this morning. So I don’t know the name of the song, or the artist. It sounds like it might be Natalie Grant. And by the repeating lyrics, I figure I can Google them and determine the song and artist.
So all during the 15 minute drive to work, I’m repeating those snippets of lyrics to myself, because if I can just repeat them often enough, I won’t forget them between the commute and the getting settled into work. But in the interim, I’m still listening to other songs. Ooh, there’s a MercyMe song. And next, a Chris Tomlin song. I love both of them! Wait, I still remember most of the new song. Most is better than none. Was it King of Heaven or Heavenly King? Oh well, I remember the next part – Breathe on me, Light my way. Or was it Light my way, Breathe on Me?
Finally I get to work, walk in, sign in, plug my laptop in, read some email…was there something I was going to look up? Yeah, that song! What was it now?
Sigh…..Nothing of any kind (not Natalie Grant) turns up and I’ve completely misremembered the lyrics.
Re: the anorexia comment, I totally get that too. I've thought that before myself, and I am definitely overweight.
Your last paragraph was just precious.
Posted by Deb on 12/02/2009 at 08:29am | permalink | Reply to this comment
This is the story of my life, only I can't articulate it like you do. I just melt down.
The important thing when you have Asperger’s is not to be able to do stuff you can’t do, but to surround yourself with people who can.
This is one of the major reasons I got married and my husband is such a doll he doesn't even mind it. He knows it's true. Somehow, he understands the incongruity of my ability to run a successful business, or rebuilding a PC in an afternoon but getting a post office box or having utilities connected at the office, guarantees trauma and an ensuing evening of sedation. That's assuming a lot, that the job would be done in a day. You're lucky. My recent DMV experience took two months and practically required a personal intervention from the governor.
Posted by Kathleen on 12/02/2009 at 09:16am | permalink | Reply to this comment
Oh man, I loved this post SO MUCH. I am always telling people that it's "exhausting being me," and I say it half-jokingly (I mask a lot of anxiety and self-doubt/loathing with humor)because I can't seem to "get my life in order." But this is really how my life is, too – and it's effing EXHAUSTING. I feel like sending this to my family – they will immediately recognize so much of what you've written as stuff I do all the time.
Hang in there sister.
Posted by Kari on 12/02/2009 at 09:32am | permalink | Reply to this comment
PT: I don't have Asperger's, but I have experienced some of the same challenges due to a head injury from a car accident a few years ago. I have a whole new appreciation for the people I used to consider "disorganized" or "clueless."
I think you would enjoy this post on a recent experience I had with renewing my driving license. [http://www.editormum.com/2009/09/12/impossible-days/] When I was reading your account of your experience at the DMV, I was reminded of my own experience. I don't know why those places have to be so complex and maze-like. And now that I suffer from panic attacks and agoraphobia, it's a torture for me to have to deal with situations and places like the DMV.
I'm glad you have the Farmer and the Ryans to help you navigate the insanity.
Posted by Editormum on 12/02/2009 at 09:38am | permalink | Reply to this comment
Wow. I just had a huge surge of sympathy for you, and for me. Not because of your perceived challenges, but because of your total identification with being asperger's syndrom, and my buying into it as well. I am really sorry for seeing you, and anyone else with whatever they're perceived "challenges" happen to be, as less than whole. Thanks for the article.
Posted by lucinda on 12/02/2009 at 10:42am | permalink | Reply to this comment
In WI they actually allow you to title/register a car at those emission testing places – that's what I did to avoid the confusion of the DMV.
Just giving you some car knowledge…
But from now on, you can just do it online, much easier!
Posted by K on 12/02/2009 at 10:44am | permalink | Reply to this comment
Reading this post was just like reading an exciting short story- plus I could connect with so many parts of it, it felt comforting to know that there's another person out there that has 3 well-known routes they usually take( so many people cannot understand this),someone who is not able, in the blink of an eye, to tell left from right, and on top of all this, someone who is NOT perfectly organized, and YES, can survive this way.
All the more reason to continue visiting your blog!
Posted by Anca C on 12/02/2009 at 11:23am | permalink | Reply to this comment
Beautiful post. I had no idea how much aspergers can affect all these little interractions that I take for granted. I hope you find ways and tools to help make all these challenges easier and smoother. I agree with the poster who says that the farmer seems like an anchor for you.
Posted by ioana on 12/02/2009 at 11:26am | permalink | Reply to this comment
I pick my cuticles, too. It's a horrible, embarassing habit, but I sort of enjoy the actual picking. It's calming.
I used to be anorexic, and the picking is so, so much better. The thoughts that go along wiht anorexia are so terrible that I wouldn't wish it on anyone, not even for a few days.
Posted by Operation Pink Herring on 12/02/2009 at 11:36am | permalink | Reply to this comment
This is such an interesting comment. I love that you can tell us, with first hand knowledge, which is worse. I believe you. But I want to know, what are the terrible thoughts? Like, what thoughts do you have when you are anorexic and what thoughts do you have when you pick your cuticles.
Oh. I hope you'll come back and write an answer…
-Penelope
Posted by Penelope Trunk on 12/02/2009 at 12:50pm | permalink | Reply to this comment
I'm not "Operation Pink Herring" — but I can tell you that small-scale fixations like picking cuticles tend to be a means of managing stress in a slightly thoughtless way — self-soothing, almost.
The thoughts of anorexia tend to involve wide-spread self-hatred, full-time obsession with food and control and how whether you eat the second half of that piece of bread means you are a very, very bad and weak person.
Posted by Caroline on 2009-12-02 14:34:48 | (Comments wont nest below this level)
Caroline described it very well.
Using food and exercise as a way to punish yourself.
Posted by Melissa on 2009-12-02 18:46:40 | (Comments wont nest below this level)
I love you too. Thank you for all your work. Keep writing, because everytime it rings bells for me and for my son. You help us navigate life.
I loved Go Dog Go too.
Posted by Joyce on 12/02/2009 at 11:54am | permalink | Reply to this comment
> There's just no good reason for this comment.
> Why tell someone that they're full of crap?
Because the truth shall set you free.
Posted by Johnny on 12/02/2009 at 12:26pm | permalink | Reply to this comment
Just don't get too complacent about what "the truth" is. It can come back to bite you in the butt.
Posted by Paul on 12/07/2009 at 05:07pm | permalink | Reply to this comment
Hey Pee, I've got one for your blog: try crashing a White House dinner and then claiming you have an invite. Try it, who knows? Maybe you'll get a reality show out of it.
Posted by John on 12/02/2009 at 12:27pm | permalink | Reply to this comment
P, you are a delight to read, even though I am reading of your misfortune! Plus…I think my husband may have Asperger's or something along that line and you are describing the things he uses to cope with (probably) dyslexia and math anxiety – subterfuge, compensation, distraction, and the comfort of soothing addictions like coffee at the gas station. He always gets to the airport hours early, hands me the check to add the tip and has to pay bills when they arrive for lack of strategizing.
I have panic disorder and I have a terrible time with social anxiety at the DMV and other official buildings. I once had an appointment and teh people in line didn't and it became an angry mob scene. I thought I'd die of embarrassment! When I see a police car, I think I may be arrested (too much Kafka?) Thanks for making my life feel less unusual.
Posted by Diana on 12/02/2009 at 01:01pm | permalink | Reply to this comment
Darn! I forgot to subscribe to comments, so I'm back, sorry.
Posted by Diana on 12/02/2009 at 01:02pm | permalink | Reply to this comment
Dear Penelope,
I've never been a joiner of clubs, or been involved in group therapy, or been a member of AA, or any gathering where people break down into public honesty. So perhaps I'm naive about what can happen when someone like yourself puts her soul on the line and speaks uncensored truth. Perhaps the outpouring of sympathy and raw anger happens a lot more than I suspect. And reading this blog, an old dream of mine is being rekindled – that given enough honesty, people will generally respond in kind. And be kind.
And so what I'm seeing here, is an admission from so many of us, that we don't have control over our personal lives. No surprise there. And very few of us feel secure about that. In fact, most of us are really scared about that. And it's comforting to see how many people are admitting how scared we all are, even through angry words. Admission of fear is uniting us, in a good way.
But even so, I gave up the idea of world peace a long time ago. But as I mentioned, part of me has NOT given up on a Community of Peace…and love…and understanding. And I know I'm getting sentimental, but so is life. And so is Brazen Careerist. And so are you, Penelope Trunk. And I don't believe you should give up one inch of that. Because in this tiny pocket of the Universe, you are forming a community of truth. And we can't let that get away.
Irv P.
Posted by Irv Podolsky on 12/02/2009 at 01:17pm | permalink | Reply to this comment
Wow! You completely opened my eyes. I mean, holy shit, i never knew it was like this for somebody with Asperger's. A good friend of my wife has Asperger's, and I now realize how lame and unsympathetic I have been. Honestly, I had no idea. Thank you for sharing.
Posted by Matt on 12/02/2009 at 01:28pm | permalink | Reply to this comment
Thanks for this – I have more compassion and greater understanding about Asperger's. Good fix at the airport. It's important for companies to make workplace accommodations so things like the math and bureaucracy situation don't cause them to miss out on excellent people.
Posted by Marsha Keeffer on 12/02/2009 at 02:01pm | permalink | Reply to this comment
Of course, remember that the excellent are the enemy of the merely good. Bureaucracy exists for reasons, number one being that I got mine and I'm damned if I'm gonna let you get yours.
Posted by Paul on 12/07/2009 at 05:09pm | permalink | Reply to this comment
My first thought was "Didn't you know you could find the VIN on the car?" Glad someone answered that. I have not been to the DMV in years because of the stress that it causes me. I can actually feel my body temperature rising at the irritation and frustration I often felt towards the employees! Your post reminds me so much of my day as a divorced mom of 3. Somehow your post was comforting in a weird sort of way.
Posted by Tina Fortune on 12/02/2009 at 02:02pm | permalink | Reply to this comment
I find it hard to believe that you have Asperger's. I definitely do not, yet I also hate going to the DMV, find it overwhelming and confusing, and I pick my cuticles (nervousness). My brother has Asperger's and he cannot connect with people (you were married and are in a relationship) could not keep a job (you do not seem to have a problem with this) and could never, ever have the organizational skills to execute this blog. Being overwhelmed at the DMV and biting you nails do not qualify you as having a syndrome.
Posted by Naomi on 12/02/2009 at 03:51pm | permalink | Reply to this comment
Naomi, Penelope does not need anyone to give her a diagnosis or dispute her diagnosis. Have you read any of her other posts? And you only picked out two incidents from the whole post; there were plenty more (getting lost on the way home; stopping and getting coffee, etc.). I just felt I had to respond to your post. She is high-functioning in many aspects of her life, but she writes about many things in which she has troubles, due to Aspergers.
Posted by Deb on 12/02/2009 at 03:58pm | permalink | Reply to this comment
PT's Aspergers is based solely on her own diagnosis. Last I checked, she's not an MD, PhD, MSW or anything remotely related to someone who can make this diagnosis competently. I can't believe how many readers believe her just because she says so.
Melania Rosseau–right on.
Posted by Belinda Gomez on 12/18/2009 at 10:18pm | permalink | Reply to this comment
This story makes me think twice as a special education teacher whom is responsible for teaching students with disabilities that makes it impossible for them to do tasks as their same age peers do.
Each day I work with students that struggle with skills that their non-disabled peers have acheived at a much earlier age.
Posted by Lisa on 12/02/2009 at 04:26pm | permalink | Reply to this comment
This comment is shocking, not for it's content but for the claim that it was written by a teacher – the first sentence makes absolutely no sense and is riddled with gramatical errors. A special education teacher, no less.
Posted by prklypr on 12/03/2009 at 09:58am | permalink | Reply to this comment
Great post, Penelope.
Posted by dennis on 12/02/2009 at 05:52pm | permalink | Reply to this comment
Seriously, Penelope. I like your blogs and I have read quite a few, but lay off the fat comments. You make such rude, assinine comments about that. Yes, I am someone who has to work out and watch what i eat very closely to stay healthy. "its always the fat people who are sensitive"
Perhaps you purposefully aim to be offensive and mean. If so, how lame. Find a different population to be crappy too, because dont worry, overweight people get it enough.
Posted by Sarah on 12/02/2009 at 09:21pm | permalink | Reply to this comment
…like her blog *posts*. blog.penelopetrunk.com is a single blog. Sorry that's a pet-peeve of mine.
Posted by Heather on 12/03/2009 at 10:46am | permalink | Reply to this comment
Hilarious post! My EX husband has Asperger's so I'm very interested in everything you write about it. You help me understand it better even though it's belated understanding. The DMV is not a fun place for any of us. Yes, Jill, "Life with people is hard". Go, dog, go!
Posted by Ruth on 12/02/2009 at 10:08pm | permalink | Reply to this comment
Directed to Ms. Trunk, some relatively (and uncharacteristically) short comments on a few matters broached here…
"I know your first inclination is to say that I’m an idiot for waiting until the end of November. But I really, really cannot deal with bureaucracy."
It sounds as if you need to be more proactive in how you approach or avoid bureaucratic encounters, from the start. *My* first inclination is to say that personal responsibility must enter the narrative at some point. I suspect that this is the place for it.
"The numbers on top always feel like they are flying and I can’t keep track of them and I’ll never get the math problem right. At least not right now. So I guess."
If your computational competence (so to speak) is so low, then you are in dire need of a support; an ever-present personal assistant, a plethora of ever-available contacts, a finely tuned system for reference, or some equally radical solution is called for. Again, despite being clichéd thanks to California overuse, you need to be more proactive (and prescient) regarding these obstacles. Follow the Delphic precept, plan accordingly, and act accordingly.
"This is not easy. I can’t read a map, and I don’t know left and right, so I can’t follow verbal directions… For me, it’s not about the fastest route, it’s about not having to follow a new one."
More problems where deliberateness is called for in your planning and decision-making. While hardly a panacea, it *will* allow you to ascertain over time which obstacles you should attend to on your own, and which require more substantial support.
"I don’t know why I say this, because just getting the words out gives me so much stress that I think I’m going to have diarrhea right there on the spot."
I find this is unfortunate vindication of my earlier suggestions.
Regarding the claims and arguments about anorexia…
"Do not tell me this is not acceptable to say."
If you were merely describing your own thoughts and feelings, I would salute you. Even transparency of the most brutal sort is commendable. But, alas…
"It’s always the fat people who say that."
This is at least one of two very bad things: Charitably interpreted, it is a painfully obtuse "sociology of knowledge" type of argument; less charitably, it is an embarrassing *ad hominem* that demands you be called out.
"Because really everyone wishes they could be anorexic for a few days, just to get their weight down."
The embarrassing forms of argumentation continue. Interpreted charitably, you are still speaking for others — something I would hope is below you. Less charitably, you fell into the genetic fallacy again.
"I’m just wishing I could be anorexic for the days that I’m picking at my cuticles. The food thing is so much more socially acceptable."
Your rigorous attention to the socially acceptable comes at the expense of perspective, and tells the tale all on its own. I must apply the descriptor being batted around in the prior comments, namely, "immature."
Doubtless, it was an intriguing post, but those aforementioned remarks detract greatly from its finer qualities. You do yourself a grave disservice, and make yourself far less sympathetic.
Posted by William Bruce on 12/02/2009 at 10:12pm | permalink | Reply to this comment
Your last line pretty much says it all, whether you have Asperger's or not. Because silly and cliche as it seems, we really do need a village.
I really don't want to do it all by myself, DIYers be damned!
Those with learning challenges — OCD, ADHD, Asperger's, etc. — have life harder than most, in part because no one else knows what to do with people with learning challenges.
Posted by Kat Wilder on 12/02/2009 at 10:56pm | permalink | Reply to this comment
The premise of this post is off: tons of DMV transactions can be done online. Yet a busy-and savvy internet person, who can't deal with red tape, and with assistants galore, decides to go waste a day at the DMV. It doesn't make sense.
Witty writing, though.
Posted by JJ on 12/03/2009 at 08:14am | permalink | Reply to this comment
You made me feel not so alone. I have the same level of confusing but it's from my diabetes and other meds. I get so frustrated that I've learned to tell people I have a hearing problem so they speak slowly and repeat themselves. It makes them feel better and I'm able to translate their words. Thank you!
Posted by Jamie on 12/03/2009 at 12:29pm | permalink | Reply to this comment
Reading the beginning of this post STRESSED me OUT and made my heart speed up I empathized so deeply. I couldn' even finish it b/c I was getting so anxious. I don't have Asperger's (as far as I know) but I'm an ENTP and I think it has to do with that and growing up in an Alcoholic family.
I also can't tell left from right and get completely OVERWELMED when confronted with burocracy, I dropped out of college b/c of not knowing how to file for graduation or write petitions. I have a speeding ticket right now, that I can't find and it is stressing me out EVERY DAY. I don't have a partner who can help with this stuff. WHAT CAN WE DO TO HELP OURSELVES?
Posted by Julia on 12/03/2009 at 01:02pm | permalink | Reply to this comment
I have ADD and your description reminded me a lot of the organizational issues I deal with.
Very well-written! Hopefully this will help some people that are perfectly organize understand us scatter-brains!
Posted by Renee on 12/03/2009 at 03:30pm | permalink | Reply to this comment
P.S. I always have to calculate my age, too!
Posted by Renee on 12/03/2009 at 03:30pm | permalink | Reply to this comment
AAA will let you register your car in their offices or even online. Perhaps getting a membership would be a good idea.
GPS is perfect for those who can't or won't read a map and have trouble with directions, even when printed out.
But I'm very interested in PT's Asperger's diagnosis. Seems to be so conveniently timed.
Posted by Belinda Gomez on 12/03/2009 at 03:43pm | permalink | Reply to this comment
Belinda,
I agree, you can register your car online, or send somebody to do it for you.
This story is so inconsistent with the image of a businesswoman who is a critical thinker, and knows how to plan ahead, set priorities or delegate, that it must be a work of fiction (well-written, btw).
Oh, and using a developmental disorder as a crutch is not cool either. Instead of showing creative solutions on how to handle her challenges, she presents an entertaining story that sounds like an episode of a wacky sitcom, or a reality-TV show.
Now, the good thing of the post is that brings attention to the life on an Aspie for people who are not familiar with this syndrome. For me, and others that are interested in career management, the post is dissapointing.
Posted by Melania Rosseau on 12/05/2009 at 10:42am | permalink | Reply to this comment
I agree that GPS is a lifesaver. I don't know how I managed without it for so long. I've had it for about a year now, and it has definitely improved my quality of life. Anyone with navigational difficulties needs one. They're pretty affordable now.
There are situations, in my state at least, in which you cannot register your car online. That includes registering a car for the first time since you bought it. I had to do the very same recently. I cou;dn't send anyone else to do it, either (as I had in previous years) because nobody was willing.
As far as the OP's diagnosis, I can't comment, really. This is the first I've read of anything here. But it sounds plausible.
Posted by Eponine on 12/29/2009 at 02:55am | permalink | Reply to this comment
@William You sound like an insufferable %$&@*. Nice post PT, you always make me appreciate the little things in life.
Posted by dale on 12/03/2009 at 03:58pm | permalink | Reply to this comment
Great post. Its times like these when I thank God there is an internet, and I can book flights without an agent, pay bills without sending mail or writing checks, do the 401k thing without a broker, buy stuff without dealing with a crowd/salesman….
And have google by my side.
I just wish I could change my drivers license address online :(
Posted by Ibrahim on 12/03/2009 at 04:21pm | permalink | Reply to this comment
I can relate. I don't have quite the same problems – I'm not dyslexic but I can't fill in forms. I have problems when people give me the wrong size spaces for the address and when people ask for information.
I often give too much information.
For example: I used to go to the doctors and before they prescribed medicine, they'd ask me if I was allergic to anything… I'd talk about cats, dust etc… maybe a few childhood allergies such as milk….
One day, my wife was in the room with me and she said – "look, the doctor isn't going to prescribe medicines containing dust or cat-hair. You don't need to tell them those things."
"Oh, I said", quite stunned, "Why didn't they say do you have any allergies TO MEDICATIONS?"
Forms are like that. Not specific enough and I often can't cope. Luckily I have my wife to help me get organised (and to frequently do things on my behalf).
Posted by Gavin Bollard on 12/03/2009 at 05:11pm | permalink | Reply to this comment
@ Ibrahim,
In Florida, you can change the address of your driver's license online, so feel free to move here :)
Posted by Sabrina on 12/03/2009 at 05:48pm | permalink | Reply to this comment
I'm a little neuroatypical and I've just come to accept that it's ok to arrange my life so I can deal with things. It took me two years and having to take a sick day to change my license from one province to another. I can only go to the grocery store once a month, it's waaaaaaay too much stimulation.
It's so true that you have to surround yourself with people who compliment you. It's also important to set boundaries. If you need the day to deal with the DMV, you need the day. That is just the way it is.
Thanks for writing about Asperger's. It's so needed.
Posted by L on 12/03/2009 at 06:29pm | permalink | Reply to this comment
FYI – picking at your cuticles is Dermatillomania (Compulsive Skin Picking). That should get you some good google results ;)
Posted by Kelly on 12/03/2009 at 07:39pm | permalink | Reply to this comment
This was a really interesting post to me – I haven't had any experience with Asperger's before.
What I really don't understand here though is why are people so unecessarily critical of Penelope, and why some are seemingly deliberately mean and rude.
It is possible to make a point people without being a total asshole about it. And it takes more skill.
Posted by Angie on 12/03/2009 at 08:24pm | permalink | Reply to this comment
I think the issue is that she waited so long to reveal that she had Asperger's. I used to come on here and bash her. She has been saying shocking and callous things for a very long time. I had stopped reading this blog months ago because of it, and then only came back because I loaded on old copy of my bookmarks onto a new PC and found out about this. She's burned a lot of people in the past who believe she is using this as a cover. My brother has Asperger's, so looking back her behavior makes perfect sense.
Posted by Anthony on 12/03/2009 at 09:01pm | permalink | Reply to this comment
"What I really don't understand here though is why are people so unecessarily critical of Penelope "
Because PT's all too eager to find a trendy reason as to why she's a fuck-up. People who really do have Aspergers need the support and empathy of society in general, but someone who claims to have it for purposes of self-aggrandizement and/or blog hits is all too deserving of scorn and criticism.
Posted by Belinda Gomez on 12/18/2009 at 10:22pm | permalink | Reply to this comment
Belinda
I don't know what to make of Ms.Trunk but she writes well, and with humour. I don't agree with every post she writes but they are interesting and thought provoking.
Your commends seem indicative of a mistrust of her writing and even her persona. Yet, you come back or at least in this post, appear quite often.
I'm curious why you appear to spend this amount of energy and time on a woman you've decided is a "fuck up"
Posted by Alex on 2009-12-26 16:49:03 | (Comments wont nest below this level)
"Is this the DMV for the gifted-and-talented?" BEST. LINE. EVER. !!!
This may be my favorite blog post I've ever read, because it made me laugh, cry and think. I have totally gotten overwhelmed this way. I always get turned around in airports and malls.
You asked who still uses stamps. That'd be me. Because my dyslexia only really shows up when I write numbers (or the words that are numbers, like four), I can't pay bills online. Doing it online goes way too fast and I wouldn't have time to catch my mistakes and fix them, whereas when I hand-write out a check I can see the mistakes.
Next time you're in SF, I'd love to get together with you. I'm excellent at socially awkward conversations and there are tons of places to buy power bars. :)
Posted by Green on 12/03/2009 at 11:02pm | permalink | Reply to this comment
Thank you for writing these recent asperger's posts, Penelope. I just love them and I'm learning a lot.
I have just started to really deal with my ADD. Though I've always been somewhat aware of it, it is amazing how, once I started talking about it to those who do not have the same issues, I really saw how much of my time and energy just goes towards compensating and working around.
So I really enjoy reading about what you deal with. Very different, but interestingly– some overlap. For years I did some mild self-mutilating and nothing seemed to help until I understood that, like you, I was doing it to focus on something less overwhelming.
Please write more of these.
Posted by Bonnie on 12/04/2009 at 01:05am | permalink | Reply to this comment
Up until I retired last June, I was a special education teacher for fourteen years, supporting students with learning disabilities in the regular classroom. My greatest frustration with my job was not working with the students (they were the best part of the job). . . the frustration was the lack of understanding for the challenges that students with learning disabilities dealt with every single minute, every day. Many of the comments posted to this blog were exactly the comments that I confronted day-to-day in school. Your experience at the DMV would help anyone who wanted a real understanding of the daily trials of Aspergers. Unfortunately, Aspergers is an invisible condition just like ADD and if you don't look strange or aren't in a wheelchair, your disability doesn't have much credibility. Keep writing, perhaps someone will learn.
Posted by Trish on 12/05/2009 at 06:50am | permalink | Reply to this comment
PENELOPE HAS NEVER BEEN DIAGNOSED BY A MEDICAL PHYSCIAN OF HAVING ASPERGER'S. IT IS A SELF-DIAGNOSIS.
I DOUBT THAT SHE EVEN HAS ADD OR WHATEVER THE LATEST POLITICALLY CORRECT ACRONYM IS. I IMAGINE 80% OF WHAT SHE WRITES ARE HALF TRUTHS AND EXAGGERATIONS….SHE'LL DO ANYTHING FOR THE TRAFFIC.
Posted by Lee on 12/05/2009 at 09:23am | permalink | Reply to this comment
Dear Lee: Let me sum up your comment for all of those who do not enjoy to read all-caps text: "…I imagine…"
Have a wonderful day :)
Posted by Jan on 12/05/2009 at 09:38am | permalink | Reply to this comment
This made me feel less alone too. I'm constantly overwhelmed by things that don't seem to bother anyone else. I also find cuticle-picking soothing.
My favorite thing that you wrote about (that no one else mentioned) was how easy it was to stop for coffee and sit there peacefully eating, how you couldn't imagine going back. I do this kind of thing all the time.
Thankyou. I needed to feel less alone today.
Posted by Spleen on 12/05/2009 at 12:54pm | permalink | Reply to this comment
Is your birthday in December? If not, a 1966 baby's gonna be 43 — not 41 or 42. Sorry, I know that's impolite to tell a lady. Or so I've been told. But I know you need help with this stuff!
I always get frustrated with bureaucracy. As a Canadian citizen residing here as a Permanent Resident, a new business owner, a father of four (including a college student), I have tons of opportunities to deal with various arms of the U.S. government. When I recently had to apply for unemployment, I was amazed at how complex it was. I can't imagine how hard it is for people who are somewhat illiterate or, in your case, process info differently.
Then again, maybe I find it difficult for the same reasons. Someone I highly respect claimed I am ADHD recently. "You've never been told that?!" he exclaimed. Sigh. Maybe I am.
Posted by Robin on 12/07/2009 at 01:22pm | permalink | Reply to this comment
Some people are just compassionless jerks. Thank you for sharing your experience Penelope. After I got lost on my way to WORK twice this morning (I go to this same office four days a week!) and felt like a big moron over it, it was nice to come to the office, share the experience with the other ADHD-er in the office and have a good laugh where she said "I have totally done that". I do not wish difficulties on others, but I do appreciate that if we are having them, would should be able to share them with others, and maybe be able to laugh instead of beat ourselves up over them.
As for the jerks…I remind myself that I'm a higher achiever than most of them anyway. Not to be jerky myself but in my experience, I think the fact that I DO have a few extra thought processing obstacles has made me a really hard worker, and hard work gets you way further in life than wasting your time picking on others.
Posted by Katy on 12/07/2009 at 01:56pm | permalink | Reply to this comment
I pick my cuticles too! Primarily when I'm nervous and it's almost like the pain is soothing? Wish I could figure out a way to quit doing it besides getting acrylic nails (ick).
Posted by Annie on 12/07/2009 at 04:02pm | permalink | Reply to this comment
You know, your description of your behavior sounds a LOT like the way I act in public settings where I have to do something by myself. When I go to the post office I am totally overwhelmed and I don't know where to go. I'm pretty good at navigating the subway station in Boston, but one day my line was shut down and suddenly I forgot where anything was.
I also have a problem with counting change when I pay for something. I feel like there is so much pressure to count the exact change amount in less than a second. So I usually either drop the coins on the floor by accident, or I just give them dollar bills and then I walk around with 10 pounds of change in my pocket that I never use. It's very embarrassing.
I have always thought I just had a problem with anxiety but sometimes I wonder. People often think I act strange or clueless…and it makes me feel very unintelligent…even though I know I am intelligent in so many other ways.
I took a test to see if I had Asperger's but it said I didn't. I don't think I am dyslexic either. Maybe I will just tell people that I am so that they don't think I'm so out of it.
Posted by alicyn on 12/08/2009 at 08:35am | permalink | Reply to this comment
Hi,
Here's an article you might like about people with autism being selected and trained to work at tasks that they can do better–than people without autism:
http://www.msnbc.msn.com/id/34047713/ns/health-mental_health/?ns=health-mental_health
Posted by Cheryl Morris on 12/08/2009 at 02:29pm | permalink | Reply to this comment
I recommend at least looking at GPSes in a store, maybe renting one to try out.
I was told that Garmin has the best USA maps and is headquartered in the USA.
I have a Garmin nuvi 1490 and I love it.
It tells me when I'll arrive at my destination.
It has real-time traffic info on it, and tells me if there's a delay or not, and how long the delay will be.
I can use it to find an alternate route if my current route is closed (like recently, part of my route home was closed–probably due to a fallen tree after a heavy rainstorm).
I can save many locations to it and give each location a name.
Otherwise, I have to get the From Address and To Address entered into a site like MapQuest, and print out the results.
But that doesn't help me find an alternate route if the road is closed.
Posted by Cheryl Morris on 12/08/2009 at 04:10pm | permalink | Reply to this comment
I can't stand bureaucracy either! Or anything "boring" that eats up my time and attention. That includes cleaning, paying bills, and other grown-up responsibilities. However, one recent wonderful surprise happened when I went to get a MA ID. I was in and out in 10 minutes! It made me that much more at ease about graduating and going into the "real world". I think that's also why I want to work for myself. I feel like I'll have plenty of time to get all my terribly annoying errands done–and I won't need a sick day!
Posted by CrazyGirl on 12/09/2009 at 10:24pm | permalink | Reply to this comment
You are wonderful, Penelope. You make me laugh with your honest, human, approach to life. Most people are very good at pretending they don't think the way we do. I'm mildly Aspie myself (mild now, not so mild growing up) and I can relate to much of what you go through. Thanks for writing it all down and helping make sense of it all, in such a hilarious way.
Posted by Bubbles on 12/26/2009 at 09:52pm | permalink | Reply to this comment
Thank you! At least I'm not the only one with issues in this area. I linked to this post in my most recent blog post, so I'll let you read that instead of retyping it all here. In short, I can relate. I can definitely relate.
Posted by Eponine on 12/29/2009 at 02:49am | permalink | Reply to this comment
Anxiety alone can cause symptoms like these, and take a normally highly competent person and reduce them to infancy. Worst is the way you then feel about yourself because it doesn't seem logical. And when paperwork is what causes the anxiety. . . anything related to government becomes paralyzing.
Imagine the problems of the people who can't afford to hire help.
Posted by Sarah on 12/29/2009 at 12:14pm | permalink | Reply to this comment
This article is a really interesting insight in to how aspies cope. My wife is very similar to Penelope with things such as figuring out left and right, social intelligence and difficulty with new things.
Posted by Curran on 03/16/2010 at 11:09am | permalink | Reply to this comment
Great article! I'm the mom of a 20-year-old Aspie, and this is so 'God, I hope I can teach my son how to do all this kind of stuff before I die and leave him to the wolves.' Moms of Aspies have panic attacks about such things at least as much as their young adults do. If you're an Aspie who can drive a car independently in the first place, pat yourself on the back, because for my son the prospect of doing such is waaaaayyyy in the future, if ever. I'm good with that. I am just as sure as he is that driving involves far too many quick decisions and judgment calls. My son would be like a panic-stricken squirrel on the road, looking and turning this way and that, while going nowhere, and hoping he won't get killed. So, we've decided to work on helping him navigate the city bus system, which is confusing and scary in itself, what with all those numbers, routes, colors, maps, connections, transfers, exact change, and people who smell funny and get too close to you.
Aspies reading this may find it comforting to know that we NT's are almost as confused and dreading of the DMV processes as they are. We wait until the last day. We have to figure out which line is for what, and often get surprised at the window that we don't have everything we need to make it easy on the first go-round. We pretty much expect it to be exasperating, and for the clerks to be less than patient and pleasant. In general, people who work in such places forget that the general public has no clue about the processes that they think are obvious. I often want to say, "Look, lady, I realize you do this all day every day, but I DON'T. So, fix that attitude, fix that look on your face, and explain what I need to do here!" I have often said exactly that in such situations. It startles them, and they shape right up, for fear that you'll ask for their supervisor. And sometimes I do just that. I refuse to be condescended to by someone with a secure job and great benefits for life who's there to serve ME.
As for those 16-year-olds who look as though they know what they're doing, they don't. They just go stand where they see other kids their age standing. Or else their parent said, "I think you should go get in that line over there. That looks like kids getting their permits and licenses for the first time."
Posted by Mia on 03/18/2010 at 01:51pm | permalink | Reply to this comment